A few weeks ago I had the opportunity to meet Noah, his mum Shelly and dad Rob when I gave him his Minion Dave. Noah has a serious condition. He was diagnosed with Spina Bifida in the womb and later developed Hydrocephalus, a build up of fluid in his skull that destroyed all but 2% of his brain. Despite all that he’s a star as I think you’ll agree after watching this video clip.
Shelly spends her time campaigning for awareness about the challenges Noah faces and spina bifida on her blog yet somehow still manages to do this amid the demands of a busy family life.
If you are on twitter please use the hashtag #HugsForNoah to follow his daily journey and visit http://hugsfornoah.co.uk to read his full story.
Did you know there’s a special auction going on at the moment for a very special little boy? Search ebay for the hashtag #HugsforNoah.
Last month I had the pleasure of meeting Noah Wall, aged two, who’s an absolute charmer with a beautiful smile who gives great hugs. He loved our talking minion and laughed when he heard the farting noises.
Noah’s mum Shelly is a blogger who spends her time campaigning for awareness about the challenges Noah faces. Somehow, she manages to do this amid the demands of a busy family life.
Noah wasn’t expected to survive being born. Scans had shown he had spina bifida and fluid on the brain. He can’t regulate his own body temperature so mum Shelly and dad Rob constantly have to take clothes off or put clothes on him.
Now Shelly has launched a #HugsforNoah auction on eBay, with the support of the likes of Peter Andre and Beverley Knight. The reason behind the sale is that the family wants to buy Noah an adapted wheelchair to help him get about. These things aren’t cheap and this particular one costs thousands of pounds.
Research has shown that a lack of folic acid three months before pregnancy – not just during – can cause spinal bifida and Shelly now spends her time raising awareness through Noah’s story.
She updated her Twitter (@ShelliBobbins) on a daily basis throughout her pregnancy and has support from celebrities including Dragon’s Den star Theo Paphitis – who handed her one of his ‘Small Business Sunday’ awards for the shop she runs to raise money for Noah.
The family has been filmed for an episode of DIY SOS to adapt his Cumbria home and they are waiting for this to be aired. Here at Excitim, we are delighted to have made Noah’s acquaintance and have our fingers crossed that the #HugsforNoah auction will be a brilliant success.
Please head over to the auction page to check out the items on offer – from lovely quality homewares to signed items from celebrities. The sale ends on Friday, June 27 – happy bidding!