Lisa at Daytrippers Bolton has sent us an email saying how our contribution has helped raise £2500 at their annual dinner dance. It’s a big boost to their funds and will surely make a huge difference to all the kids they support.
Daytrippers Bolton is a parent and carer led registered charity that provides days out and activities for disabled children and their families living around Bolton, Lancashire.
Daytrippers Bolton was the brainchild of one parent who had 2 young children one of whom has severe disabilities. Having a day out as a family was a nightmare with an active 4yr old and a child with disabilities. The day usually ended in tears with their visit having to be cut short due to her child with disabilities having a seizure or becoming unwell. This lead to the family feeling very isolated.
Gradually getting to know other parents and carers of children with disabilities made her realised that she was not alone and that abandoned days out and isolation were a common occurrence.
With this in mind she set about looking at ways to improve the situation she found herself in and decided to book a session at The Space Centre, Preston, a special needs soft play/sensory centre and asked other like families if they would like to go.
Today, October 1st, 2014 is World Cerebral Palsy Day. Please visit this website: www.worldcpday.org to learn more about the condition that effects around 17 million people around the world.
World Cerebral Palsy Day
Is a global innovation project to change the world for people living with cerebral palsy and their families. It is designed to gather ideas from people around the world and make the best of those ideas a reality.
The project is led by a group of non-profit cerebral palsy charities, and supported by organisations in over 45 countries.
It’s a very informative website and there were a bunch of facts that jumped out at me – things I’d not previously known about the condition:
There are 17 million people across the world living with cerebral palsy (CP).
Another 350 million people are closely connected to a child or adult with CP. It is the most common physical disability in childhood.
CP is a permanent disability that affects movement. Its impact can range from a weakness in one hand, to almost a complete lack of voluntary movement.
It is a complex disability: 1 in 4 children with CP cannot talk, 1 in 3 cannot walk, 1 in 2 have an intellectual disability, 1 in 4 have epilepsy.
CP is a lifelong disability and there is no known cure.
Here is a link to two very helpful infographics: ‘What is Cerebral Palsy?’ and ‘Cerebral Palsy: Diagnosis and Treatment’ you can download from the About page (towards the bottom)
Change My World in 1 Minute
This is all about collecting ideas for ‘products’ that could help people with CP. People are invited to Post an Idea on the website. When they do they have just 1 minute to present the idea – in a video or text – and post it on the World Cerebral Palsy Day website. Ideas are welcome until October 31st after which the judges will decide the winners.
Watch this video to learn more about World Cerebral Palsy Day.