A few weeks ago I had the opportunity to meet Noah, his mum Shelly and dad Rob when I gave him his Minion Dave. Noah has a serious condition. He was diagnosed with Spina Bifida in the womb and later developed Hydrocephalus, a build up of fluid in his skull that destroyed all but 2% of his brain. Despite all that he’s a star as I think you’ll agree after watching this video clip.

Shelly spends her time campaigning for awareness about the challenges Noah faces and spina bifida on her blog yet somehow still manages to do this amid the demands of a busy family life.

If you are on twitter please use the hashtag #HugsForNoah to follow his daily journey and visit http://hugsfornoah.co.uk to read his full story.